Registered Charity No
1128653
Duchenne muscular dystrophy (DMD) is the most common and severe form of neuromuscular condition. Genetic in origin, it causes progressive muscle weakness with loss of the ability to walk in the early teens, and significantly reduces life-expectancy. There is no cure. Since 1987 the Duchenne Family Support Group, a UK national charity, run by families, for families, has been providing invaluable support to those in the UK affected by DMD.
We want to help all affected families to have the best quality of life, with rewarding experiences, supportive friendships and sound advice whenever they need it. Our national support network for parents, families, and professionals, through our free telephone helpline, and responses to social media, enables families to talk in
confidence to others facing similar issues. We also connect local families to form networks for mutual support.
Days out bring families together so they can feel part of a community, as well as being able to share stories and discuss tips and ideas. Our Mums' Weekends give mothers a chance to meet, rest, and share. Arranging, and subsidising when possible, holidays for families in the UK and abroad, we find accessible accommodation to enable several families to stay together as a group, get to know each other, relax, establish friendships and have fun!
To find out more or to become a member, please visit our website.